000			05352cam a22005294a 4500
001			musev2_57622
003			MdBmJHUP
005			20250527155914.0
006			m o d
007			cr||||||||nn|n
008			140826s2015 nyu o 00 0 eng d
020			_a9780801455414
020			_z9780801455421
020			_z9780801453625
035			_a(OCoLC)1080551568
040			_aMdBmJHUP _cMdBmJHUP
100	1		_aBall, Susan C., _d1957- _eauthor.
245	1	0	_aVoices in the Band : _bA Doctor, Her Patients, and How the Outlook on AIDS Care Changed from Doomed to Hopeful / _cSusan C. Ball.
264		1	_aLondon : _bILR Press, an imprint of Cornell University Press, _c2015.
264		3	_aBaltimore, Md. : _bProject MUSE, _c2019
264		4	_c©2015.
300			_a1 online resource (272 pages).
336			_atext _btxt _2rdacontent
337			_acomputer _bc _2rdamedia
338			_aonline resource _bcr _2rdacarrier
490	0		_aThe culture and politics of health care work
500			_aBibliographic Level Mode of Issuance: Monograph.
505	0		_a1992: Beginning -- 1992: So much to learn -- 1992: No easy answers and little to offer -- 1994: Too many drugs, no medication -- 1994: Being mindful of the subtext -- 1994: Weekend on call -- 1994: Christmas -- 1995: Another support group -- 1995: Mothers and children -- 1995: Decisions and revisions -- 1995: Colleagues and families -- 1995: So many stories and some new faces -- 1996: Some hope in the despair -- 1996: Hit early, hit hard -- 1997: Amazing changes -- 1999: Despite our best intentions -- 1999: Coping with a different paradigm -- 2000: Going home.
506	0		_aOpen Access _fUnrestricted online access _2star
520			_a"I am an AIDS doctor. When I began that work in 1992, we knew what caused AIDS, how it spread, and how to avoid getting it, but we didn't know how to treat it or how to prevent our patients' seemingly inevitable progression toward death. The stigma that surrounded AIDS patients from the very beginning of the epidemic in the early 1980's continued to be harsh and isolating. People looked askance at me: What was it like to work in that kind of environment with those kinds of people? My patients are 'those kinds of people.' They are an array and a combination of brave, depraved, strong, entitled, admirable, self-centered, amazing, strange, funny, daring, gifted, exasperating, wonderful, and sad. And more. At my clinic most of the patients are indigent and few have had an education beyond high school, if that. Many are gay men and many of the patients use or have used drugs. They all have HIV, and in the early days far too many of them died. Every day they brought us the stories of their lives. We listened to them and we took care of them as best we could."-from the Introduction In 1992, Dr. Susan C. Ball began her medical career taking care of patients with HIV in the Center for Special Studies, a designated AIDS care center at a large academic medical center in New York City. Her unsentimental but moving memoir of her experiences bridges two distinct periods in the history of the epidemic: the terrifying early years in which a diagnosis was a death sentence and ignorance too often eclipsed compassion, and the introduction of antiviral therapies that transformed AIDS into a chronic, though potentially manageable, disease. Voices in the Band also provides a new perspective on how we understand disease and its treatment within the context of teamwork among medical personnel, government agencies and other sources of support, and patients. Deftly bringing back both the fear and confusion that surrounded the disease in the early 1990's and the guarded hope that emerged at the end of the decade, Dr. Ball effectively portrays the grief and isolation felt by both the patients and those who cared for them using a sharp eye for detail and sensitivity to each patient's story. She also recounts the friendships, humor, and camaraderie that she and her colleagues shared working together to provide the best care possible, despite repeated frustrations and setbacks. As Dr. Ball and the team at CSS struggled to care for an underserved population even after game-changing medication was available, it became clear to them that medicine alone could not ensure a transition from illness to health when patients were suffering from terrible circumstances as well as a terrible disease.
546			_aEnglish.
588			_aDescription based on print version record.
650		7	_aAIDS (Disease) _xPatients _2fast _0(OCoLC)fst00793864
650		7	_aAIDS (Disease) _2fast _0(OCoLC)fst00793808
650		6	_aSida _zNew York (État) _zNew York _xHistoire.
650		6	_aSideens _zNew York (État) _zNew York.
650		0	_aAIDS (Disease) _zNew York (State) _zNew York _xHistory.
650		0	_aAIDS (Disease) _xPatients _zNew York (State) _zNew York.
651		7	_aNew York (State) _zNew York _2fast _0(OCoLC)fst01204333
655		7	_aHistory _2fast _0(OCoLC)fst01411628
655		7	_aElectronic books. _2local
710	2		_aProject Muse. _edistributor
830		0	_aBook collections on Project MUSE.
856	4	0	_zFull text available: _uhttps://muse.jhu.edu/book/57622/
945			_aProject MUSE - Archive Complete Supplement VII
945			_aProject MUSE - Archive Public Health and Health Policy Foundation
999			_c32161 _d32161