Voices in the Band : (Record no. 32161)

MARC details
000 -LEADER
fixed length control field 05352cam a22005294a 4500
001 - CONTROL NUMBER
control field musev2_57622
003 - CONTROL NUMBER IDENTIFIER
control field MdBmJHUP
005 - DATE AND TIME OF LATEST TRANSACTION
control field 20250527155914.0
006 - FIXED-LENGTH DATA ELEMENTS--ADDITIONAL MATERIAL CHARACTERISTICS
fixed length control field m o d
007 - PHYSICAL DESCRIPTION FIXED FIELD--GENERAL INFORMATION
fixed length control field cr||||||||nn|n
008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION
fixed length control field 140826s2015 nyu o 00 0 eng d
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
International Standard Book Number 9780801455414
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
Canceled/invalid ISBN 9780801455421
020 ## - INTERNATIONAL STANDARD BOOK NUMBER
Canceled/invalid ISBN 9780801453625
035 ## - SYSTEM CONTROL NUMBER
System control number (OCoLC)1080551568
040 ## - CATALOGING SOURCE
Original cataloging agency MdBmJHUP
Transcribing agency MdBmJHUP
100 1# - MAIN ENTRY--PERSONAL NAME
Personal name Ball, Susan C.,
Dates associated with a name 1957-
Relator term author.
245 10 - TITLE STATEMENT
Title Voices in the Band :
Remainder of title A Doctor, Her Patients, and How the Outlook on AIDS Care Changed from Doomed to Hopeful /
Statement of responsibility, etc. Susan C. Ball.
264 #1 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE
Place of production, publication, distribution, manufacture London :
Name of producer, publisher, distributor, manufacturer ILR Press, an imprint of Cornell University Press,
Date of production, publication, distribution, manufacture, or copyright notice 2015.
264 #3 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE
Place of production, publication, distribution, manufacture Baltimore, Md. :
Name of producer, publisher, distributor, manufacturer Project MUSE,
Date of production, publication, distribution, manufacture, or copyright notice 2019
264 #4 - PRODUCTION, PUBLICATION, DISTRIBUTION, MANUFACTURE, AND COPYRIGHT NOTICE
Date of production, publication, distribution, manufacture, or copyright notice ©2015.
300 ## - PHYSICAL DESCRIPTION
Extent 1 online resource (272 pages).
336 ## - CONTENT TYPE
Content type term text
Content type code txt
Source rdacontent
337 ## - MEDIA TYPE
Media type term computer
Media type code c
Source rdamedia
338 ## - CARRIER TYPE
Carrier type term online resource
Carrier type code cr
Source rdacarrier
490 0# - SERIES STATEMENT
Series statement The culture and politics of health care work
500 ## - GENERAL NOTE
General note Bibliographic Level Mode of Issuance: Monograph.
505 0# - FORMATTED CONTENTS NOTE
Formatted contents note 1992: Beginning -- 1992: So much to learn -- 1992: No easy answers and little to offer -- 1994: Too many drugs, no medication -- 1994: Being mindful of the subtext -- 1994: Weekend on call -- 1994: Christmas -- 1995: Another support group -- 1995: Mothers and children -- 1995: Decisions and revisions -- 1995: Colleagues and families -- 1995: So many stories and some new faces -- 1996: Some hope in the despair -- 1996: Hit early, hit hard -- 1997: Amazing changes -- 1999: Despite our best intentions -- 1999: Coping with a different paradigm -- 2000: Going home.
506 0# - RESTRICTIONS ON ACCESS NOTE
Terms governing access Open Access
Standardized terminology for access restriction Unrestricted online access
Source of term star
520 ## - SUMMARY, ETC.
Summary, etc. "I am an AIDS doctor. When I began that work in 1992, we knew what caused AIDS, how it spread, and how to avoid getting it, but we didn't know how to treat it or how to prevent our patients' seemingly inevitable progression toward death. The stigma that surrounded AIDS patients from the very beginning of the epidemic in the early 1980's continued to be harsh and isolating. People looked askance at me: What was it like to work in that kind of environment with those kinds of people? My patients are 'those kinds of people.' They are an array and a combination of brave, depraved, strong, entitled, admirable, self-centered, amazing, strange, funny, daring, gifted, exasperating, wonderful, and sad. And more. At my clinic most of the patients are indigent and few have had an education beyond high school, if that. Many are gay men and many of the patients use or have used drugs. They all have HIV, and in the early days far too many of them died. Every day they brought us the stories of their lives. We listened to them and we took care of them as best we could."-from the Introduction In 1992, Dr. Susan C. Ball began her medical career taking care of patients with HIV in the Center for Special Studies, a designated AIDS care center at a large academic medical center in New York City. Her unsentimental but moving memoir of her experiences bridges two distinct periods in the history of the epidemic: the terrifying early years in which a diagnosis was a death sentence and ignorance too often eclipsed compassion, and the introduction of antiviral therapies that transformed AIDS into a chronic, though potentially manageable, disease. Voices in the Band also provides a new perspective on how we understand disease and its treatment within the context of teamwork among medical personnel, government agencies and other sources of support, and patients. Deftly bringing back both the fear and confusion that surrounded the disease in the early 1990's and the guarded hope that emerged at the end of the decade, Dr. Ball effectively portrays the grief and isolation felt by both the patients and those who cared for them using a sharp eye for detail and sensitivity to each patient's story. She also recounts the friendships, humor, and camaraderie that she and her colleagues shared working together to provide the best care possible, despite repeated frustrations and setbacks. As Dr. Ball and the team at CSS struggled to care for an underserved population even after game-changing medication was available, it became clear to them that medicine alone could not ensure a transition from illness to health when patients were suffering from terrible circumstances as well as a terrible disease.
546 ## - LANGUAGE NOTE
Language note English.
588 ## - SOURCE OF DESCRIPTION NOTE
Source of description note Description based on print version record.
650 #7 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element AIDS (Disease)
General subdivision Patients
Source of heading or term fast
Authority record control number or standard number (OCoLC)fst00793864
650 #7 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element AIDS (Disease)
Source of heading or term fast
Authority record control number or standard number (OCoLC)fst00793808
650 #6 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Sida
Geographic subdivision New York (État)
-- New York
General subdivision Histoire.
650 #6 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Sideens
Geographic subdivision New York (État)
-- New York.
650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element AIDS (Disease)
Geographic subdivision New York (State)
-- New York
General subdivision History.
650 #0 - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element AIDS (Disease)
General subdivision Patients
Geographic subdivision New York (State)
-- New York.
651 #7 - SUBJECT ADDED ENTRY--GEOGRAPHIC NAME
Geographic name New York (State)
Geographic subdivision New York
Source of heading or term fast
Authority record control number or standard number (OCoLC)fst01204333
655 #7 - INDEX TERM--GENRE/FORM
Genre/form data or focus term History
Source of term fast
Authority record control number or standard number (OCoLC)fst01411628
655 #7 - INDEX TERM--GENRE/FORM
Genre/form data or focus term Electronic books.
Source of term local
710 2# - ADDED ENTRY--CORPORATE NAME
Corporate name or jurisdiction name as entry element Project Muse.
Relator term distributor
830 #0 - SERIES ADDED ENTRY--UNIFORM TITLE
Uniform title Book collections on Project MUSE.
856 40 - ELECTRONIC LOCATION AND ACCESS
Public note Full text available:
Uniform Resource Identifier <a href="https://muse.jhu.edu/book/57622/">https://muse.jhu.edu/book/57622/</a>
945 ## - LOCAL PROCESSING INFORMATION (OCLC)
a Project MUSE - Archive Complete Supplement VII
945 ## - LOCAL PROCESSING INFORMATION (OCLC)
a Project MUSE - Archive Public Health and Health Policy Foundation

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